My Celiac Disease Diagnosis

My name is Diana Scott, I am 43 and was finally diagnosed with Celiac Disease this year and was accurately diagnosed with Ehlers Danlos Syndrome two months before my 40th Birthday.  Therefore, I have lived almost my entire life with misdiagnosis.

The numerous individuals in the medical field just passed me from one to the next, because I wasn’t in the textbook and they weren’t getting paid for the extra work it would take to figure out what was going on with my body.  Quite frankly…I was just another number with a whole host symptom’s that don’t fit together in typical medicine.   So, they treated the symptoms, which in medical terms means throw pills at the problem because they don’t know how to help me.

Well, lucky for me, I married a man who happened to be a chiropractor and he took the extra time to figure out what was going on with my body and thus I am writing this blog.  If we can help at least one person, then our plight will have been worth it.  I am not advocating marrying a chiropractor, but I am advocating that you TAKE CONTROL OF YOUR HEALTH.

Working in corporate America I used phrases daily like “hope you are doing well”, or anytime I was asked how I was doing, I would respond with such joy about how great my day was, and all the niceties of being in corporate America or being human for that matter.  When actually deep down I want to respond by saying, “how am I doing”, let me tell you how I am doing…I slept three hours last night, so I am exhausted, and to be sitting upright at this very moment, I have had an energy drink, three cups of coffee, energy pills, and I am day-dreaming about crawling into bed tonight and its only 8:30am.  My body is in so much pain, I don’t know whether to cry or throw-up, I don’t know whether to feel sorry for myself or be angry.  I am also rereading this same sentence 15 times because I can’t remember what it is I am writing about due to the brain fog.   Then, please excuse me while I scurry to the restroom, because I need to go immediately  since I have taken six laxatives over three days in an attempt to go at an appropriate time (like maybe at home), but apparently my body has decided its time now, even though I was expected in a meeting five minutes ago. Daily, I think about how it would be to be “normal”, whatever that means.  What is wrong with me?  Why am I hurting?  Why am I depressed?  Why am I having a panic attack?  Why am I alive?  Why is GOD doing this to me?  What did I ever do to deserve this?

Doctor after doctor and test after test, no one could help me.  Yet, I am prescribed another pill to fix the problem that the last pill caused, because to survive, I have masked all my problems with the myriad of medications that have been thrown my way for 40 years.  Each day I must prepare my body in order to just get out of bed.  The exhaustion and pain become too much to bare.

What are my real problems?  I have Celiac Disease and Ehlers Danlos Syndrome (EDS) Subtype III.   But what does that truly mean?

The Celiac Disease has caused complete body inflammation, my body has actually started attacking my stomach (its an autoimmune disease). I have leaky gut, severe bowel problems, brain fog, joint pain, and malnutrition.

Due to the EDS my joints can randomly dislocate or subluxate, I am in severe pain at all times, so I am very much a Handle with Care Package.  Basically, my body doesn’t make the needed “glue” or collagen to hold itself together.  I have mitral valve prolapse which in turn causes my heart to randomly skip beats and that creates a panic attack.  My blood pressure is either way too high or is about to bottom out.  I have a hiatal hernia and had to have an endometrial ablation at 28 due to severe endometriosis, my skin bruises easily and will simply just split apart or I can randomly have a seizure.  I have fragile blood vessels, and an extremely weakened immune system.   And both Celiac and EDS create severe Chronic Fatigue Syndrome.

So what is all of this about… what’s the answer? There is no cure for Celiac Disease or EDS…so why am I sharing all of this?  I am not just complaining, I am inviting you on this journey with me… TO TAKE CONTROL OF MY HEALTH.    After working with Dr. Scott and his patients, I can see that many of you are suffering from various illnesses as well and have similar symptoms.  Dr. Scott and I will update you with what we are doing to treat the causes of these symptoms and how it is affecting my health, a diary of sorts.   We are focusing on dietary changes, using essential oils, natural supplementation such as Standard Process, cleansing/detoxification foot bath, far infrared sauna, color therapy, massage therapy and chiropractic care.

So far in one month, I can honestly say that I feel better than I can ever remember feeling.  This is an important process for me, so much so, that I am getting certified as a detoxification specialist. It is that important to me!  It is that important that I TAKE CONTROL OF MY HEALTH and help you TAKE CONTROL OF YOUR HEALTH.  I am taking my body slowly back to the basics and to a natural state in order to reboot my system.

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